Educational specialist Susan Norwell and OT Judy Lariviere provide a wealth of information on going beyond yes/no and choicemaking to build real communication in girls affected by Rett Syndrome. Thanks to the Rett Syndrome organization for making this video available.
Filed under: Video of the Week
Tagged With: Judy Lariviere, Rett syndrome, Susan Norwell
When we did our graduate training, there was little or no mention of Rett Syndrome, a genetic disorder involving a mutation of the MECP2 (Methyl CpG Binding Protein 2) gene on the long arm of the X chromosome. It is a complex disorder and the abilities of those who are affected by it are generally masked by the motor challenges that are a part of Rett. We’ve asked some professionals experienced in Rett and AAC to help us use this space to help us gain a better understanding of the disorder and its implications for AAC intervention. Sally-Ann Garrett (Highly Specialist Speech and Language Therapist; Reg. HCPC; MRCSLPT, Reg. ASLTIP) is one who agreed to do so and we are grateful for her perspective. Sally-Ann is semi-retired now but has worked with girls affected by Rett Syndrome for 30 of her 42 years as an SLT. She lived in Canada for a number... [Read More...]
Filed under: PrAACtical Thinking
Tagged With: Rett syndrome, Sally-, Sally-Ann Garrett
In our SLP training programs, few of us learned about Rett Syndrome or how to provide services to children with that disorder. We’re so pleased to have a guest post on AAC services for children with Rett by Dr. Theresa Bartolotta, Director of Assessment in the Office of the Provost, and Associate Professor in the Department of Speech-Language Pathology, at Seton Hall University, in South Orange, New Jersey. An SLP with over 30 years of clinical experience, she specializes in communication disorders in children with significant disabilities with a special interest in autism and Rett syndrome. Our field is still learning about Rett syndrome and we are still discovering new things about the range of skills and abilities present in the children who have it. In this post, Dr. Bartolotta gives us some background about the syndrome and discusses implications for treatment. I am thrilled to have this opportunity to post... [Read More...]
Filed under: PrAACtical Thinking
Tagged With: eye gaze, Rett syndrome, RTT, Theresa Bartolotta